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View Full Version : Time to Talk Lyme Again


Webmaster
08-10-2007, 09:20 AM
by Lorraine Hart

It was with great interest I read the story of Bush being treated for Lyme disease last year. He's a lucky man to have the money and medical attention to respond immediately with treatment, following the discovery of a bullseye rash. The Bb (Borrelia burgdorferi) bacterium, when caught early, can often be successfully treated with a course of antibiotics. This is the "no speed-bumps," happy ending experience with Lyme. I do, however, note that Bush is still experiencing dizziness and disorientation from a "flu virus" he had months ago...classic symptoms of a viral co-infection possible with the same tick bite, called Babesia.

There's another story about Lyme though, and it affects hundreds of thousands of North Americans. Unlike the West Nile Virus that has everyone afraid of a coming disaster, Lyme disease is a plague decimating the population now (at an estimated rate of two-hundred-thousand new cases each year) and largely being ignored in its chronic form because of inadequate testing and money being made, keeping things as they are.

The Bb spirochete is related to the Syphilis spirochete...like the Stealth Bomber is related to the Sopwith Camel. Left unchecked it can enter every system of the body and cause havoc. Lyme left untreated becomes a crippling disease, physically and mentally and is only one of the infections possible (both bacterial and viral) in one tick bite.

In November of 2006 the Infectious Disease Society of America (a powerful Bloc) used only their own 400 studies to make guidelines for Lyme, insisting that chronic Lyme does not exist. There were over 18,000 research studies and many of them agree that chronic Lyme certainly does exist but these were not accepted, hence the IDSA is now under investigation by the Connecticut State Attorney General's Office, for exclusionary data-collecting. There's a lot of money to be made from pharmaceutical companies in medical studies and a lifetime of maintenance medications for those suffering.

My daughter is in her ninth year of this disease. Our family has been to hell and not yet back, nearly losing her, while having to fight with doctors for the legitimacy of her illness. Can you imagine how surreal it was to have a neurologist at Harborview explain an EEG as showing Lyme bacteria activity interrupting brain waves...and then have the family practice primary care doctor, downstairs in the same hospital, deny the disease's existence...actually telling my daughter she should, "will herself out of that wheelchair," before he fired her as a patient.

There are hundreds of Lyme patients in the Puget Sound area, suffering and being abused by a medical system unfamiliar with a real and present plague. Had the Key Peninsula doctor we took my daughter to in 1999 been educated, I wouldn't be writing to you today. I don't hold it against him personally but I DO want to see local doctors receiving more education, so that other families can be saved from this agony. Out of necessity, we have researched Lyme for nearly nine years and can claim to be more educated about the disease than over 95% of American General Practitioners.

There's a tremendous story here that I've tried to interest local journalists in, asking them to go beyond Infectious Disease doctors who insist there is no story, while people are suffering and dying from Lyme disease. There's plenty of scientific research that supports the claims of the families who are banding together to be heard. Sites for information on Lyme are:

www.lymediseaseassociation.org

www.ilads.org

http://www.lymenet.org/
http://www.lymeinfo.net/
http://www.columbia-lyme.org Columbia Lyme Research Centre
http://home.swbell.net/dsny1fan/LymeDisease.html -- Lyme Disease: The West Coast Connection

from: http://blogs.thenewstribune.com/neighborhood?title=time_to_talk_lyme_again&more=1&c=1&tb=1&pb=1

Webmaster
10-18-2007, 01:39 PM
by Lorraine Hart

This was a previous posting of mine. I felt it was important to put it back up, in light of an article in the Vashon-Maury Island Beachcomber, Sept. 5th. The article reports the first confirmed case of Lyme being contracted on Vashon Island. Here's a link for the article...

http://www.vashonbeachcomber.com/portals-code/list.cgi?paper=90&cat=23&id=1057186&more=0

Now for the original post:

While everyone holds their breath and waits for the dreaded Avian Flu, there is another clear and present danger…a plague with numbers bigger than AIDS in North America. I’m talking, dear reader, about Lyme disease. I can hear you now, “We don’t have Lyme disease in the Pacific Northwest. That’s a disease back east!”

Wrong. There are hundreds in the Puget Sound area suffering. Ask Rebecca Wells, author and Bainbridge Island resident. One of the co-infections possible with Lyme is named Washington 1 because it was discovered here.

Lyme disease is a bacterial infection introduced by the bite of a tick. If the infection is caught early, it’s a relatively easy fix with a thorough course of antibiotics. If the bacteria is not caught early, Lyme causes multi-systemic havoc and unbelievable suffering. This, dear reader, is why I’m talking to you today. Knowledge is power.

When you go for your hikes or when your kids go out to play, make sure shirts are tucked-in, pants tucked in socks, many opt for using DEET. Most importantly, when you come home, check yourself, especially in skin-folds (elbow, armpit, back of the knee) and check each other, especially children. Understand that ticks in nymph stage are no bigger than the period at the end of this sentence. Look hard to see if that small fleck of dust can be moved.

Initial symptoms can include a bulls-eye rash but not always. The person feels flu-like symptoms, especially achy joints. Educate yourself by checking out these sites…

www.lymediseaseassociation.org

www.ILADS.org

Testing for Lyme in humans is woefully inadequate. The tick itself is easier to test so I really recommend every household and car first-aid kit include a tool for safely removing and carrying the tick to your medical lab. www.ticktool.com

While the medical community argues about chronic Lyme, hundreds of thousands of people suffer in this country. My daughter is in her ninth year of this disease and we know whereof we speak. Had Washington doctors been educated in Lyme, years of her suffering would not have been. I don’t want this for you, dear and gentle reader. Learn the facts of Lyme and keep your family safe.

source: http://blogs.thenewstribune.com/neighborhood/2007/09/14/talking_lyme

Webmaster
12-21-2007, 09:48 AM
by Randy Sykes

Please help by going here and signing the petition...you will have our thanks forever...

http://www.lymecryme.com/

Please send this web site out to all groups and Dr's offices. I wanted to have it up and running sooner than this to help Dr. Jones in his battle but lyme makes things take longer than we plan on. This web site covers everything from bogus testing to treatment failure and proves fraud with intent to do harm.

Please sign the petition and pass it on.

This link is under construction and will receive about six more papers Friday and the rest over the next month as they come in. If you have any papers that will help build a data base please send it.

Thanks,
Randy Sykes
The Greater Hartford Lyme Disease Support And Action Group

Webmaster
01-08-2009, 10:13 PM
WE INVITE YOU TO JOIN US FOR A SCREENING OF THE AWARD-WINNING LYME DOCUMENTARY “UNDER OUR SKIN”

THIS EVENT IS
DEDICATED TO THE MEMORY OF
LESLIE RAE WERMERS
7/7/’67 ~ 11/2/’08
A LYME WARRIOR

WHEN: Tues., Jan. 13th, 6:30pm
WHERE: Gig Harbor High School
ADMISSION: Free
(Donations may be made to Open Eye Pictures for the Turn The Corner Foundation, which funds Lyme disease research and education)

FOLLOWING THE FILM WILL BE A Q. & A. SESSION WITH A PANEL CONSISTING OF
A LYME-LITERATE MD, AN L-L ND, AN L-L RN, CHRONIC LYME PATIENTS, AND A CAREGIVER.

OUR GOAL:
ADVOCATE & EDUCATE IN WA. STATE!
Online Lyme Support Group for Wa. Residents:
http://health.groups.yahoo.com/group/WALDUC-Support/

Lyme disease (with co-infections) is the fastest-growing vector-borne disease in the world today, an estimated 200,000 possible new infections every year in North America.